Young Girl Diagnosed with Rare Disorder Must Hide from Sun, Cover Every Inch of Skin

After experiencing mystery symptoms as a baby, Adeline Tonhaeuser was diagnosed with a severe type of porphyria, a rare disorder that affects about 200,000 Americans. Her skin is hypersensitive to sunlight, leading to painful blisters, infections, and scarring. **Life in Isolation** Adeline, now 7 years old, must avoid all UV light, even indoors.