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Cape Town \u2013 A Johannesburg family are desperately trying to raise funds to accommodate their son who was diagnosed with optic nerve hypoplasia (ONH) at seven months old.<\/p>\n
ONH is a congenital disorder characterised by underdevelopment (hypoplasia) of the optic nerves. The optic nerves transmit impulses from the nerve-rich membranes lining the retina of the eye to the brain.<\/p>\n
Zeenat Moosa, 23 and her husband Kaashif, 30, from Florida, are trying to raise R300 000 for their 2-year-old son, Keyaan.<\/p>\n
Speaking to , Zeenat said they noticed something was wrong when Keyaan did not react to bright lights and his eyes were not steady.<\/p>\n \u201cKeyaan was born at 37 weeks due to no oxygen. He was placed in ICU.<\/p>\n \u201cAs time went by and it came to his seven-month check-up, I mentioned to the doctor that he was behind in reaching his milestones.<\/p>\n \u201cShe referred us to another doctor and he immediately said Keyaan is blind.<\/p>\n \u201cWe got a second opinion and that doctor confirmed he had ONH,\u201d she said.<\/p>\n Zeenat said the doctor said while Keyaan was still young he would be affected by many things and would only be able to tell them once he is older if he could see anything.<\/p>\n \u201cAs new parents, this is not something you want to go through. He will not be able to do certain things with us.<\/p>\n \u201cHis condition also brings many issues such as growth, speech. He does speak one or two words but he needs speech therapy.<\/p>\n \u201cKeyaan started standing last year, he needs physiotherapy to assist as his lower core and legs are very weak.<\/p>\n \u201cOnce that is completed, he\u2019ll have to get occupational therapy,\u201d Zeenat told .<\/p>\n The mother, who also has a three-month-old baby, says doctors in Johannesburg only take cash.<\/p>\n Keyaan has regular doctor visits for multiple check-ups such as blood work, hormones and thyroid, and MRIs.<\/p>\n The family have to fork out between R3 000 and R4 000 a doctor\u2019s visit and have to claim from their medical aid.<\/p>\n Keyaan also attends a special needs school where he receives normal schooling but the school fees are R5 000. The family can only afford to send their child twice a week because they cannot afford it.<\/p>\n The family are trying to raise funds not only for medical care and schooling, but for a walking aid, walking cane and a guide dog.<\/p>\n \u201cThe school has a relationship with the company which has the guide dogs, however Keyaan will have to take sessions with the dog, which will be groomed from a puppy stage to assist him. They will grow together, but sessions are R8 000. To own the dog will cost R10 000,\u201d Zeenat explained.<\/p>\n The mother said the costs remained a major hurdle for the family and doctors in South Africa were not too clued up about her son\u2019s condition.<\/p>\n \u201cThere is currently a trial for stem cell therapy for ONH in Germany but we can\u2019t afford that. We\u2019re now trying to raise funds just to ensure Keyaan has his basics. This fund-raising is just to kick-start for his needs.<\/p>\n \u201cWe are hoping that perhaps in the next five years doctors in South Africa will have gained more knowledge for children with Keyaan\u2019s condition,\u201d Zeenat said.<\/p>\n The family have managed to raise R11 228 on Back-a-Buddy.<\/p>\n If you would like to assist Keyaan, please contact Kaashif on 083 385 9474 or email the family at [email protected]<\/p>\n [email protected]<\/p>\n","protected":false},"excerpt":{"rendered":" – Advertisement – Cape Town \u2013 A Johannesburg family are desperately trying to raise funds to accommodate their son who was diagnosed with optic nerve hypoplasia (ONH) at seven months old. ONH is a congenital disorder characterised by underdevelopment (hypoplasia) of the optic nerves. The optic nerves transmit impulses from the nerve-rich membranes lining the […]<\/p>\n","protected":false},"author":1,"featured_media":1063969,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3894],"tags":[],"class_list":["post-1063968","post","type-post","status-publish","format-standard","has-post-thumbnail","category-south-africa"],"_links":{"self":[{"href":"https:\/\/www.ghanamma.com\/2022\/wp-json\/wp\/v2\/posts\/1063968","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ghanamma.com\/2022\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.ghanamma.com\/2022\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.ghanamma.com\/2022\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ghanamma.com\/2022\/wp-json\/wp\/v2\/comments?post=1063968"}],"version-history":[{"count":0,"href":"https:\/\/www.ghanamma.com\/2022\/wp-json\/wp\/v2\/posts\/1063968\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.ghanamma.com\/2022\/wp-json\/wp\/v2\/media?parent=1063968"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.ghanamma.com\/2022\/wp-json\/wp\/v2\/categories?post=1063968"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.ghanamma.com\/2022\/wp-json\/wp\/v2\/tags?post=1063968"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}![](\"https:\/\/www.ghanamma.com\/za\/wp-content\/uploads\/2022\/04\/a93c5fe3-92bb-5568-a239-af0f028abf62.jpg\")
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